About the role
We are seeking an experienced Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.
Responsibilities
- Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations. - Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies. - Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms. - Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations. - Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging. - Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.
Requirements
- Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfunding. - Identify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partners. - Create fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communications. - Plan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channels. - Build donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retention. - Establish fundraising targets, timelines, budgets, reporting processes, and performance metrics.
Text as published by Digital. We don't edit postings; apply and ask questions on the employer's site.